It's about Fibromyalgia, how I deal with it, what my thoughts are on health care, doctors, care givers, relationships, etc. It's a spin off of my blog that deals with the health topic.
This one is the third I've published on the subject (it's called "Fibro and Fabulous The Book") and I hope to do a few more. I want to write one about pregnancy and my husband and I are going to collab for one on relationships.
Chronic conditions are tough to deal with on your own, but when you have loved ones in the mix it can get overwhelming. You should see some of the blog entries I've come across over the years. They would make you sad.
One gal actually decided not to have a child because of her Fibro illness. I thought that was so sad and discouraging for others to read. Fibro is not a death sentence, you may have to change your lifestyle a little, but you can LIVE with it.
Anyway, that's why I'm so passionate about the subject.
I can relate as I suffer from chronic migraines. It's frustrating--I never know if it's going to be "one of those days." I'm sure it's nothing like what you have, but at least it's an inkling, and I have definitely had my share of run around from the healthcare community. Is the book more of a memoir or more from a scientific point of view or both?
It's actually both. I set the book up a lot like my blog and each entry reads like a journal. Some of the entries are from my own personal life experiences, others are about what's going on in the news and my thoughts on it, and others are about scientific findings and research.
You are so fortunate to have a loving and interested daughter and above that, a child who takes the time to stop what she does and gives you so much attention. Too often our children live in their own small world and don't often step out. I congratulate you for keeping in touch with your daughter which in turn has kept her in tune with you.
Yes I am very lucky, although as she has become a teacher it has certainly become more challenging. Kimberly, the book sounds interesting. I think combining the factual information with the actual real-life experiences of having the disease would be really important.
I wanted to write a book that had straight talk about the disease. I didn't want it to sound all gloom and doom and I most certainly wanted to give my readers information that is helpful.
Some info out there will point to studies, but then when you research the actual study, you find out that there were only a handful (and I do mean handful) of participants.
I don't know about you, but I don't find that helpful at all. What's scary is that people are writing about these studies as facts and some of them are doctors! These "facts" just couldn't be farther from the truth. Fibro hits every patient differently and their experience with the disease can be as vast as the symptoms.
It will really help once there is more research done. Right now, it's hard for some who suffer because some of the medical community still believe that Fibro isn't real. I don't understand how it couldn't be when there is even documentation in the Bible about it, but that's part of our realty.
Well, I think I've rambled enough LOL! I really get fired up as you can tell.
I hear you...I have found the same sort of frustration with migraines. Doctors often don't believe the pain is real because it's not something that can be "proven" or verifiable. And yet sooo many people suffer from them. I think a lot of the time that, because it is largely a women's issue, it is misunderstood and downplayed.
How is fibromyalgia discussed in the Bible? I have been seeing commercials on TV for more medications which at least means there are more people in the mainstream who are aware of it. It must be really difficult to deal with since it is a nerve-based pain right? Again, it's subjective but no less real.
Good reply, I think hope is up on the scale for all of us. There is talent in all of us, but some of us don't let it loose. Some talent has to be developed and some has to be coached, but all in all, every last one of us can always do better. Thank you.
PS, my fourth edition of In Search of Paradise will be on the market within four weeks and there is a chapter in that book titled attitude. Let me know and I will try to arrange for the publisher to send you a copy. This was my first book which is now over thirty years old and was written for classes that I taught way back then.
It's true, all of us have talent with a lot of different things. Some of us are really good writers, some editors, some do great at PR. Some of us are that all rolled up into one-- a bonus I know. There is always room for improvement, yes.
Congrats on the fourth edition! Sounds like a great read. I'd love to hear more about it.